ESPN 53rd Annual Meeting

ESPN 2021


 
Illness-related Parental Stress, Quality of Life and Problem Behavior in Children with Chronic Kidney Disease
LORE WILLEM 1 NO√čL KNOPS 1 DJALILA MEKAHLI 1 ELKE DE BRUYNE 2 JOHAN VANDE WALLE 2 ANN RAES 2 SARAH REYNAERT 3 DOMINIQUE TROUET 3 KOEN VAN HOECK 3 SYLVIE VANKERCKHOVE 4 JOY ASSENMAKER 4 BRIGITTE ADAMS 4 STEPHANIE LEROI 5 LAURE COLLARD 5 ALINE MICHAUX 6 NATHALIE GODEFROID 6 ELENA LEVTCHENKO 1

1- UNIVERSITY HOSPITAL LEUVEN
2- UNIVERSITY HOSPITAL GHENT
3- UNIVERSITY HOSPITAL ANTWERPEN
4- HUDERF BRUSSELS
5- GROUPE SANTE CHC LIEGE
6- UNIVERSITE CATHOLIQUE DE LOUVAIN
 
Introduction:

Tertiary centers of pediatric nephrology in Belgium provide multidisciplinary care for children with chronic kidney disease (CKD). This care is essential as studies have shown that CKD has an impact on the psychosocial development of these children and their families. Many studies have focused on QoL. However, less is known about the illness-related stress of parents and its relation with child psychosocial functioning. Therefore the aim of the study was to investigate (1) illness-related stress in parents of children with CKD with and without kidney transplantation (Tx) and (2) explore associations between illness-related parental stress, QoL and problem behavior in the child.

Material and methods:

QoL was assessed by means of PedsQL Core 4.0, child problem behavior by means of the Child Behavior Checklist (CBCL) and Illness-related parental stress by means of Pediatric Inventory for Parents (PIP).  

Results:

In total 49 children (30 boys; M age= 10.06, range 0-18) and their parents were included. Parents of children with Tx reported higher illness-related stress (p < .05), compared to parents of children without Tx. Results show negative correlations between PIP and PedsQL (p < 0.01) and positive correlations between PIP and CBCL (p < .01).

Conclusions:

Our study show that CKD also affects the parents, and especially parents of children with a Tx. Parental stress, child QoL and problem behavior are also interrelated. These results show the importance of a multidisciplinary team that focus on the entire family of children with CKD.